In 2009 I showed this monster at the #ArmoryShow in NYC. It's a 3D model of migraine pain sensations.
My brain is convinced a kid belly flopped on it but who knows with my memory.
#fiberart #sculpture #mastoart #crochet #contemporaryart #chronicallyill #disabled #pain #migraine
Hey dude, I haz neurology am shut-in. I used to run an arts business volunteer board of directors do civics ride orange bike all over GrittyCity be friend glamp hard rock shows raves accordion recital thrift make love art openings sticker/flyer bomb drive fly to ‘yerp. Not no more
Fire up some #hash tags #fnd #migraine #ptsd #cpstd #functionalNeurologicDisorder #MMJ #feminist #disability #ChronicPain #ChronicFatigue #Trauma #DisabilityRights #SensoryIssues #Privacy #Hemipeligic #fibromyalgia
#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)
I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.
My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.
Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.
Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.
https://www.twitter.com/Halcionandon for backstory.
It’s nice to be here.
Hope this place stays cosy.
(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)
Short version of #Crowdfunding post. Please #boost!
👋🏻
I need #help escaping an #abusive environment. Government services aren’t sufficient and neither is my meagre income. I‘m #Disabled by #ChronicIllness which makes it even harder. I can’t do it alone.
Any help appreciated.
If you can help:
https://www.buymeacoffee.com/halcionandon
or
Australians can save me fees (I get 100% of your donation) by using for free:
https://www.beem.com.au
Username: @halcionandon
#Boost please!
Long version with details: https://aus.social/@halcionandon/109322206417308941
@mutualaid
#MutualAidRequest #MutualAid #DisabilityCrowdfund #SevereME #AbuseSurvivor #pwME #MECFS #LongCovid #Covid #NEISvoid #ChronicPain #Migraine #Spoonie #DisabledSocial
I’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)
Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
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Please take a moment to read my short piece, A True Horror Story
https://dianemartingutel.com/index-2/a-true-horror-story/
