The first quote is from the author who wrote this piece. He got Long Covid in 2021 in spite of "being up-to-date with vaccinations and always wearing a mask" -
"(I wrote this lying down. I sat at my old desk to write and it was a mistake so I had to lie down. Every time I rewrote this or sent Anne questions I was lying down. I dictated some of my questions. I even dictated some of the edits.)"
2/n
The next few quotes are from Anne Ursu:
"And it's impossible to get any help; so many doctors think CFS patients are either malingering or being hysterical, the prevailing treatment at the time was actively harmful, and the rare doctor that believes what you have is real still has no idea what to do. It’s thirty years since I first got diagnosed, and we don’t know much more about CFS than we did back then."
3/n
"Also, you truly cannot separate the personal experience of having this disease from the social experience of it. ME/CFS and other postviral illnesses simply don’t fit into societal narratives about how sickness works, and people get real uncomfortable when something doesn’t fit into their narratives."
"The idea that you could just become completely disabled out of the blue with something no one understands or can treat is a truth unpleasant for people to grapple with."
4/n
